Find Salaries Media & Communications Autism Speaks messages almost always create a backlash. Dr. Shih holds a Ph.D. in molecular cell biology from New York University School of Medicine. The Internal Revenue Service is substantially delayed in processing and releasing nonprofit filings, so documents available here may not be the most recent an organization has filed. Autism Speaks is celebrating their 10-year annniversary. President, Chief Executive Officer and Trustee, RPT Realty. Not scaring people, Liz Todd. He spent nearly 30-years in leadership roles at leading global financial institutions, including Goldman Sachs, Deutsche Bank, BMO Capital Markets and Mizuho Securities where he built effective teams and partnered with a broad array of stakeholders to identify innovative ways to enhance and scale platforms while tackling complex challenges. This is causing more damage in terms of the costs of crime and costs of police, courts and supporting prison populations in society. does it really educate about autism?I believe in personal encounters, I believe in talking and explaining my autism to others, I believe in finding things we all have in common rather than looking for differences. In his current role of chief science officer, Mr. Shih is responsible for the science portfolio, including grantmaking, the MSSNG genomic research project and the Autism Care Network. Autism Speaks Engaged Employer Overview 104 Reviews 17 Jobs 87 Salaries 18 Interviews 42 Benefits -- Photos 25 Diversity + Add a Review Autism Speaks Reviews Updated Apr 7, 2023 Filter by Topic Remote Work Work Life Balance Senior Leadership Coworkers Compensation Culture Career Development Management Benefits Workplace Covid 19 Although there isn't a set limit of what a non-profit CEO's salary could be, $600,000 seems like an awful lot. Emailus. Autismspeaks.org is the #1 ranked website for autism. With a focus on advocacy and support for individuals and families affected by autism, Autism Speaks spends about $45 out of every $100 on compensation related expenses. Eugenics is eugenics, Tina Richardson, I have no way to make my feelings known about the awful negative myths and fear- mongering, advertising campaigns about autistic people they use to gain dollars for their main goal, short-sighted eugenics goals, whilst silencing protest with a few small strategically timed handouts, Stephy Tihanyi, Our pieces are not missing and we are not puzzles. Ive had similar conversations with lobbyists in California. As a child you have others to take care of you as an adult with autism you are often all on your own and the only help you can get is from family or friends who are able or willing to help, Maranda Russell, Gee Vero, from Germany writes: In Germany lots of autistic people and parents of autistics think Autism Speaks is the answer to all their prayers. has helped spread the awareness for us in regards to finding artistic talent for our 2015 calendar. The Autism Collaboration, Accountability, Research, Education, and Support Acts of 2014 and 2019 (Autism CARES) and earlier laws that authorize autism research, surveillance and training. Support our autistic bloggers and artists. However, it has become increasingly clear that autism doesnt need a cure. Brian Harper, chairman of the board of directors, Autism Speaks, said, The last 18 months have been especially hard in the autism community, with people suffering from significant isolation and dislocation. Autism Speaks finances this program at 13 other facilities where the same services are provided. I was at a dinner with the Director of another nonprofit which served autistic people. Despite being widespread, autism is still poorly understood. Prior to that, she was a divisional controller at Springer Science and Business Media, where she worked for 13 years and began her career in finance and technology. If you have used our data or site in your research or reporting, add credit and a link to Nonprofit Explorer in your story or publication and let us know. 8 Autism Speaks Ceo jobs. Mr. Autism Speaks is dedicated to creating an inclusive world for all individuals with autism throughout their lifespan. Ms. Geiger has served as a critical member of the search team responsible for identifying her successor and will work closely with Mr. Wargo to ensure a smooth and seamless transition. My entire family is autistic. If you want to do an in-depth view please ask those who are raising a severe child/adultHigh functioning autistics wear it like a badge of honor great good for them, have pride in who you are, but those on the severe side that have to wear head gear to prevent skull fractures from banging their head, unable to communicate, cant function independently and are living a life day to day trapped in a body they cant control is NOT the same. Liz Becker, parent. The Art of Autism. Joe Vanyo joined Autism Speaks as Chief Operating Officer in February 2020. 3 Autism Speaks Chief Executive Officer jobs. Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. On Twitter, Autism Speaks recent #MSSNG hashtag as a platform for genome research was responded with by #NOTMSSNG and #ActuallyAutistic hashtags by autism advocates. For those interested in acquiring the original data from the source, heres where our data comes from: Enter a nonprofit's name, a keyword, or city, https://projects.propublica.org/nonprofits. Internships; Follow Company. The least common salary at Autism Speaks is $100k-200k. there is something about the very escence of the autistic neurology that frightens these people very much. The organization spent about as much on entertainment, travel, and catering as they did on grants for family services. It appears theyve cherry-picked people who are experts at branding, fundraising, advertising, and getting a questionable media message across. To find resources, join an event or make a donation, go to www.AutismSpeaks.org. He assumed the role of senior vice president of advocacy in 2018 and leads Autism Speaks advocacy efforts. It makes me uncomfortable how some autistic people wont engage or strongly criticise parents involved with Autism Speaks. In 2013 Autism Speaks spent $120 million as follows: In addition to the above, Autism Speaks spends about a million a year in lobbying activities for autism insurance reform and raising federal funding for genetic and biomedical research and services for autistic people. Most notably was the creation of the global "Revolution is Inclusion" campaign which ignited a movement for inclusion in schools, healthcare, and employment for people with intellectual disabilities. Mr. Wargo joins Autism Speaks after a long and successful career in finance on Wall Street. Autism Speaks employees are most likely to be members of the republican party. Dont get me wrong, Im sure those people deserve helpbut when someone with autism reaches adulthood and especially if they are high-functioning and expected to be independent THAT is when we often need the most help! The organizations original mission statement reads: We are dedicated to funding global biomedical research into the causes, prevention, treatments and a possible cure for autism. Before joining Autism Speaks, Kelli served as the Chief Marketing, Communications and Development Officer for Special Olympics. In writing this article, I talked to many people about Autism Speaks. Autism Speaks was founded in February 2005 by Bob Wright, vice chairman of General Electric, and his wife Suzanne, a year after their grandson Christian was diagnosed with autism. In an exuberant investor presentation, which has now been taken offline, Cryo-Cell dubbed 2021 "our pluripotent year" and included a slide showing that it expected an annual revenue of $24 million. Thank you again, Debbie! The Stephen Beck, Jr., Achieving a Better Life Experience Act of 2014 (ABLE), which allows people with disabilities to save money in special investment accounts without losing government benefits such as Medicaid or Supplemental Security Income (SSI). * The fact that they are motivated at all to work on autism-related issues means that they are already ahead of the general public. His research background includes published studies in gene identification and characterization, virus-cell interaction and cell-cycle regulation. Although Autism Speaks has not prioritized services with a practical impact for families and individuals in its budget, its rates of executive pay are the highest in the autism world: in 2019, between salary and bonuses Autism Speaks paid their CEO nearly $1 million. Im in my forties. For this blog, I reviewed the Autism Speaks 2013 Financial statements and their 2013 990 IRS form. They have personally witnessed the positive impact that Autism Speaks has on enhancing the lives of people with autism and their families through research, advocacy, supports and services. Some people who talked to me wished to remain anonymous. Yes Debbie, indeed, its time to turn the mirror back around! 500,000 autistic children will become adults in the next decade. I dont like their videos they post that act like autism is a nightmare for new parents. What is also very odd is that the organization is titled Autism Speaks, but it has a history of not letting autism speak. Keith and his wife, Anne, are parents of two adult children, one of whom has autism. Autism Speaks was first founded in 2005 by Bob and Suzanne Wright after their grandson was diagnosed with autism. I am disappointed by the shortcomings of ASs follow-through, yet I am hopeful Debbies article will find its way into the hearts of those involved with AS. Stuart Spielman joined Autism Speaks in 2008 as senior policy advisor and counsel after a long legal career and years of advocacy as a volunteer. Boycott Autism Speaks encourages people to boycott sponsors of Autism Speaks as well. Dr. Shih has held various leadership roles in the organization throughout his tenure including senior vice president of public health and inclusion. Brian Harper, chairman of the board of directors, Autism Speaks, said, "The last 18 months have been especially hard in the autism community, with people suffering from significant isolation and dislocation. People with autism and the family and friends who stand alongside them are . More recently, Mr. Wargo became an owner of Monarch Cypress, an industry-leading amenity manufacturer and supplier, where one of the company's missions is to employ autistic individuals. PRINCETON, N.J., Oct. 7, 2021 /PRNewswire/ -- Autism Speaks, the nonprofit organization dedicated to promoting solutions across the spectrum and throughout the life span for people with autism and their families, today announced that Keith Wargo has been named president and CEO of the organization. Debbies article un-turns a significant discrepancy in the manifestation of ASs original intentions and the woefully inadequate Good Works of its follow-through. Katie Wright, the Wrights daughter, says her parents could have had a nice retirement but instead decided to bring awareness to autism. They went on to explain Dawsons cross-country moving expenses by saying that her presence on the east coast makes her more accessible to Autism Speaks offices, three of its science divisions and government health agencies in Washington, D.C. Editors Note: (5/7/2016) The Art of Autism received its nonprofit status this year. 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